Categories
Healthcare

I am become the rash

Recovered from the Wayback Machine.

There are many things I’d like to talk about today. There is Yule Heibel’s post on Foucault and self-exposure, and Mike Golby’s and alembic responses. Yule wrote:

Understand this: whatever is translated into discourse is instrumentalised as social control. It is not the case that chatter about your sexuality or your neuroses or your deepest darkest secrets makes society a freer place. It instead makes it a more fully explored, more discursive place, which in turn contributes to mechanisms of control. People and their exposures are turning into social maps, we’re less multi-dimensional and increasingly flattened into a one-dimensional discursive space.

Which leads one to wonder: how much do we really want to know about each other?

Then there’s the social software folk, who I haven’t pestered for a couple of days. Has anyone but me noticed how they reference each other almost incessantly but rarely reference those on the ‘outside’? It reminds me, somewhat, of how early settlers would pull their wagons into a circle to protect themselves from exposure to attack.

And the day is a beautiful day, with warm weather and beautiful skies still continuing even though rain is predicted every day. I should talk about this. Or better yet, go for a nice long walk somewhere and get away from the re-roofing that is driving me mad. However, I fear that if I open the door, I’ll be exposed to flying debris from the roof.

I could talk about all these things, but I won’t. I am going to talk about my rash, instead.

Though this might fit into the category of things you’d rather not know my life has been compressed down to a single awareness: I am the rash and the rash is me. It has spread now to my torso, including my butt, and down my legs. In fact, the only place not covered is my lower arms and hands and my face and neck.

(Wait, wait! I take that back – in the light of the beautiful day, I noticed forward guards of the rash only inches away from my wrist on my left arm. )

My doctor was out yesterday but the clinic connected me with another. She believes the rash is caused by an allergic reaction to the medicines, and to stop taking all of them (which I had already done). I asked her about the ringing ears, aching joints, and lowered spirits and other effects (in fact, the symptoms I had that led me to the doctor originally and led to this round of medicine), but she said that I can take this up with my doctor at a later time; now I have to focus on the rash.

She didn’t feel that topical creams would work and prescribed Prednisone, a cortisone treatment. She warned that she doesn’t necessarily like to prescribe this medicine because it can cause ulcers, so I have to take it with other medication to hopefully cut down this risk.

As you can imagine, I am not sanguine about yet another medication with serious side effects. Researching it online, I also noticed that many times when a severe rash is treated with Prednisone, when the course of pills is finished, the rash will return. This cycle can continue for several rounds.

I then decided to research more on rashes. When you ask a doctor what causes a rash, he or she will answer that some specific agent will cause it: allergic reactions, certain plants, and certain diseases. But they don’t answer you about why you get a rash.

More playing around with Google and I found a few papers that talked about why a person gets a rash. A rash is your body’s way of trying to eliminate something it’s been exposed to; something that’s toxic to it. You get it because your skin is one of the tissues of the body most susceptible to irritation from toxins, and consequently, the one most likely to react. That’s why you’ll get a rash with an allergic reaction, or from sickness. In fact, when you’re feeling sick and have a fever, or a rash, or sinus effects, this is actually your body’s way of fighting disease.

Rashes, fever, runny noses, flu-like symptoms – rather than be something to fight, necessarily, they should be seen more as friends and allies in the war to stay healthy.

Of course, after reading this I felt less negative about my rash, though the knowledge of the helpfulness of it does not decrease the extreme discomfort from it. But it does me hesitate about taking the medication.

I am not a difficult patient. Truth be told, I have had a remarkably healthy life until fairly recently when I had the problems associated with my gall bladder. (Well, there are the effects of falls during walking; but these injuries can be seen as noble, as compared to sickness.) I have rarely gone into the doctor when sick, preferring to let my body deal with any problems. I haven’t had many antibiotics in the past and consequently feel that this has strengthened my body against future illness.

However, when I have gone in to the doctors I have listened to what they’ve said and taken the pills they’ve given me. Now, though, I have begun to question whether the course the doctor prescribes is the course I want to follow.

I have watched my father as he clings to life at 93, not enjoying much quality of life now, as he takes so many pills during the day that they have to be scheduled and the bottles kept in a large container. Each prescription costs about 130.00 to 150.00 dollars and even his doctor admits that there’s no real evidence that the pills will help Dad’s memory, or his sense of balance, or any other effects my Dad is experiencing.

My father, who worked in a lumber camp in Alaska when he was a kid, and served with the railway as an engineer during the depression; made captain in the field during World War II; was a good cop for 20 years with the State Patrol and also served his country as a fraud investigator, and with the civilian police in Vietnam –my father’s life has now been reduced to an almost obsessive fixation on his health and his medications and his visits to the doctor, and little else.

When I tell people my Dad’s age, they tell me how great he’s lived this long, and how fortunate I am; sometimes I agree, but other times all I can do is look at them. I wonder, in quiet moments, if my father has lived too long, and all the pills are doing is chaining him to a shell he left a long time ago.

But who am I to question my Dad’s doctors? Death is a dark secret that we’re only given the truth of once in our life, and most people would rather cling to life then be initiated into that club. But sometimes there’s a thin, thin line between the two, and for me, life would end when I couldn’t walk through my woods, and smell Spring flowers, or appreciate the wit of my friends and the taste of a really good orange. However, ask me again about life in say, 30 years.

I bought the pills yesterday and should start taking them this morning – taking 12 small pills, all at once. My rash itches, but if you scratch it, it feels like a burn, and looks like one too. The skin is starting to break down in a couple of spots, which leads to a risk of infection. I can get relief in these little pills, though they may start something that leads to other little pills, which lead to other little pills, and so on. Just like with my Dad.

I think that I’ll just let my body do its thing, but I think on the time when I was 12 and was hospitalized because of a severe rash from an allergic reaction, and am reminded that sometimes things break beyond what the body can heal. Exposure can make us stronger, but it can also kill.

One day. I’m going to wait one day and try the various home remedies and cortisone creams one can buy over the counter and just see how it goes. Besides, if I take a steroid, which is what Prednisone is, I won’t be able to compete in the Olympics.

Categories
Healthcare

Confetti

I had a bad allergic reaction to one of the medicines the doctor gave me. Ringing in my ears until I can’t hear, severe headache, horrid rash under arms and down sides and on to my breasts, and dizzy, and disoriented.

As I wrote someone, perfect weblogging conditions.

So I followed the medicine’s instructions (what to do if…) and called the doctor’s office, but she’s out today. Her assistant wrote down the symptoms and said she’d have the other doctor call me back. Two hours later, the assistant calls and tells me to stop taking the medicine, see if the symptoms go away tomorrow. I tell her the package says not to stop suddenly, or you could have problems. She pauses and says, ‘Well, it’s only for one day.” Oh, and if I feel worse, head into the emergency room.

That’s the new American HMO doctor–metered office appointments (ten minutes per patient), lots of tests (at the same clinic, I’ve noticed), and prescriptions. Pills for this and pills for that; medicines to squirt up your nose and shove up your…never mind. And if you react, she’ll give you another to counter it. When you ask about side effects, you’re told no worries. (Well, it was recalled once. And one of her patient’s did have a seizure.) But then you look up the medicine online and find it has some very serious side effects, including allergic reactions. Bingo!

Today’s HMO: Clowns dressed as doctors, with painted smiles and confetti at hand to throw . If you ask them to stop a moment, they’ll pinch your nose and honk.

Ends today. No more pills. None. Well, except Advil for aches and Tums for my stomach (and calcium). I’m going to try a new regime, it’s called learning to live with getting older, and the sometimes aches and pains that come with it.

Take two walks, and call me in the morning.

I’ll stay healthy, all on my own. That will show the medical community–can’t fuck around with me.

Sorry to all the excellent doctors, nurses, and other healthcare workers out there. This post is me venting.

Categories
Healthcare Photography Writing

Listen to our bodies

Recovered from the Wayback Machine.

After my cleaning frenzy last week, I woke up the next morning with hands that hurt so much I couldn’t use them. I then realized that by increasing measure, I’ve had aches and pains in my hands, my wrists, my feet, and recently my back and even my shoulders. Downing Tylenol and Advil and increasing my nightly drinking did not seem to be an effective way to deal with this problem.

The new doctor I have was very good about getting me in right away. When I met with her, I pointed out the possibility that the increasing pain in various parts of my body could be due to the tick bites I’ve suffered the last couple of years. Though Lyme Disease is rare here, there are Missouri-based variants that exhibit similar symptoms.

My doctor, a lovely young woman originally from India, gave me a gentle smile and nodded as I talked, no doubt thinking all the while about how the Internet is more trouble than it’s worth at times. She asked me several questions about other aspects of my health, took a close look in particular at my hands and wrists and then asked me if there was a history of arthritis in the family.

Well, my Dad has arthritis but that came with age as he got older. She asked if there was any rheumatoid arthritis in the family, and I told her not that I know of. I am familiar with rheumatoid arthritis because the uncle of my first husband suffered from an advanced case of it; his hands were very distorted and he could only wear slippers.

She had me undergo tests, yes even for tick diseases, but told me that from my po’me tale (not her words, my own editorial addition), and the appearance of my hands that I am most likely suffering from rheumatoid arthritis.

Well, in a way it’s nice to know that I’m not a hypochondriac assuming much with each slight pain, but I’m not sure how happy I was to give up my exotic illness. After all, it’s much more interesting to write about a disease picked up from treks through the wild woods of Missouri, then to write about a disease that happens because life dealt me the short straw in this instance.

She gave me some anti-inflammatory medicine to use, which does help, but only to a point. In addition to medicine and applying cold and warmth and wrapping the wrists and even fingers at times, she also told me that I will have to cut back on the amount of time on the keyboard.

Now, for a writer, this is a problem. I spend on an average 10-12 hours a day at the keyboard, either on my books or articles, or writing to this weblog. If I cut back, I’m going to have to restrict most of my keyboard time to work that brings in income, which means less time to the weblog. This was something I had to think about, give myself time to wrap my mind around the idea.

Ultimately, though, I think this is going to be a healthy thing for me. I do need to spend less time on the computer and more time ‘out there’. And my body has just decided to enforce this decision. However, this will mean changes.

For one thing, I won’t be able to sit at my computer and program for hours, like I used to a few years back. This might restrict some of the things I’ve been wanting to try, but I haven’t been in the mood to tech tweak for the longest time anyway, as demonstrated by the still non-existent Poetry Finder. (As noted in comments attached to Loren’s lovely post referencing Emily Dickinson’s use of the robin in her poetry. No worries about being reminded of the Poetry Finder, Loren. BTW, when did that ‘Vote for Bush” sticker start showing up on your weblog pages?)

I will be writing less online, but there are numerous advantages to writing less. One that springs instantly to mind is that I’ll have more time to think about what I’m writing, which means I probably won’t get into as much trouble. Perhaps “Burningbird” will become “Simmering Bird”. Maybe even “Thoughtful Bird”.

Additionally, there are alternatives to writing through a keyboard that I have been wanting to try for some time, such as using a recording device to record my thoughts while I’m out an about. With the new speeech recording software, the recordings can be converted into text and I can use this to help me create my weblog posts, or even to do my books. No reason I can’t use it to help write my books.

Even more interesting, I don’t have to convert the recording to text. Though sound files aren’t effective for all the devices people seem to use to read weblogs, and can be unfriendly to modems, still they are an alternative technique to typing into the computer. In fact, I recorded my first audio blog using the built-in mic on my computer, and shareware software I downloaded from the Internet. The post was a lark, just a ramble, and ended up being truncated at 3 minutes, but I had fun doing it. I just need to figure out how one can talk like one writes. There is no textual varation for pausals such as ‘uhm’. I’ve also found, with myself at least, that writing imposes form, which leads to coherency. I am concerned that all my audio posts will end up being blather.

On the bright side, though, I can actually record the sounds to go with the pictures I take.

Speaking of pictures, I’m also going to have to restrict my film camera photography because the cameras are heavy enough to cause a great deal of strain. Still, that removes the guilt from spending time with my digital camera–my lovely lightweight digital camera–even though the photos I take can’t be sold. Who cares if I can’t sell them, they’re fun.

Eventually, along with my audio recording device I’ll pick up a a digital SLR camera that’s lighter than my film cameras, and can take publication quality photos. But for now, I can write metaphorically through sound and sight. My only concern is for those who have audio impairments, but hopefully they have sound-to-text conversion software they can use. And I’ll still write. Have to shoot me to get to stop completely.

In the meantime, more flower photos from the Orchid Show currently happening at the Missouri Botanical Gardens, in St. Louis. You can see one posting with all the photos here.

orchid11.jpg

orchid13.jpg

orchid14.jpg

orchid15.jpg

orchid12.jpg

orchid16.jpg

Categories
Healthcare

Surgery Redux

I’ve decided to really get my money’s worth out of my various insurances, because I spent the morning in oral surgery and still a bit foggy from the gas and sedatives, and pain pills.

There must be an unwritten contract for surgeons in St. Louis, because the oral surgeon was just as nice as the surgeon that removed my gall bladder. However, I think I’ve about had a surfeit of nice surgeons, as well as lab x-rays and broken bones, surgery, pain pills and various other things.

Life, just because I now have insurance, doesn’t mean you you have to dump all those things you’ve been saving up on me all at once.

Still, everything that’s been treated is taken care of, never to return. My health is great, my blood pressure has never been better. Damme, kick my tires, I got miles to go, babies.

Categories
Healthcare

Irony sweet blissful irony

After writing the post about Jeneane and her COBRA going up and then heading off to the doctor, I came and found a letter from the company who I have COBRA through – my medical and dental insurance premiums have also increased.

More, they’ve changed the dental provider effective December 1. So the deductible that I paid today will no longer work for the new company. When I go in next week for work, I’ll have to pay a new deductible.

Let’s try something new, shall we? Instead of all of us saying why we’re not voting for Bush next year, someone come in and give a reason why they would. I’d say a good reason, but that song won’t play in my neighborhood.